Advocacy is an important part of the political process at the federal, state, and local levels. It brings ordinary citizens into the policymaking process so that different viewpoints can be heard before government officials’ act. Advocates greatly enrich the policymaking process by making elected officials aware of benefits or consequences of proposals that they may not have fully appreciated.

COA is a voice and convener for cancer advocacy across the United States. Our goal is to ensure that our diverse community is heard and makes an impact in cancer and health care policy. Check out the links below to learn more about COA’s advocacy work and find out how you can become a valued contributor to the policymaking process.

Take Action on PBM Abuses

A collection of tools including downloadable forms and templates organized  by actionable issues provided by Frier Levitt.

TAKE ACTION NOW

Have a PBM Experience?Share yours with COPA.

More Info Below

We are collecting patient and practice experiences around the difficulties encountered when trying to get oral prescriptions filled by specialty, mail order, or other retail outlets, outside of physician retail and dispensing pharmacies. If you are aware of patients encountering delays in receiving their medications; having their prescribed medications changed; extensive waste; disrespect or rudeness from customer support; lack of financial support through foundations or other patient assistance because it is not being sought by these pharmacies; or any other issues that have had a negative impact, please submit your story above.

These stories are extremely critical and are used to help educate our members of Congress, as well as payers and related parties that impact how patients receive their care. COA does not share any patient specific data or practice names without the permission of the patient or the practice. Our Patient PBM Horror Stories papers are shown bel as examples of issues that patients have encountered trying to get their oral drugs filled by pharmacies and PBMs.

The Real-Life Patient Impact of PBMs

Volume I

READ THE FULL STORY HERE

Volume II

READ THE FULL STORY HERE

Volume III

READ THE FULL STORY HERE

Volume IV

READ THE FULL STORY HERE

Volume V

READ THE FULL STORY HERE

Please participate by filling in all the applicable fields above and submit the experience for our database so that we may continue to fight this battle on behalf of our patients. These stories support our fight by showing how patient care administered at the site of care is improved when patients are allowed to get their drugs dispensed within practice pharmacies. Alleviating the problems described in these stories, leads to better patient adherence; time to fill; lower costs to patients and the health care system; less waste and overall greater patient satisfaction.

CPAN

Community Oncology Alliance Patient Advocacy Network

VISIT CPAN